Yesterday and last night was very rough and we are still without a lot of answers. I’m going to post some updates below regarding what was found from the surgery and what they are doing today from my aunt. Please continue to pray for our family emotionally and physically. I know what I feel like after being at the hospital for 17 hours yesterday and then only getting about 3 hours of sleep so I can only imagine what my aunt and uncle are going thru right now. She doesn’t want to be laid down and she let’s you know real quick when you move her that you are hurting or irritating her. There is no way of explaining the emotions on her face. One minute she is smiling and laughing and the next she is in such distress that you wonder if she will catch her breath. Emerie loves her siblings but yesterday she would only allow her parents, my other aunt, and myself hold her. This is very trying and disappointing to not have answers but we know God is with us every step of the way.
THIS MORNING...
Rough Night
Posted 23 minutes ago
Emerie was very uncomfortable all night. She had to sleep sitting straight up in Jeff's lap. She only wanted daddy to hold her so we definitely know that she is daddy's girl. Needless to say we didn't get any sleep. She is very irritable this morning. She is fixing to try solid foods for the first time so we will see how that goes. The doctors came in and basically I think they just don't know what to do. They have decided to put her back to sleep today and do a reconstructive cat scan. They rarely do these these types of scans. Somehow it slices the vertebrae into little sections and it gives them alot better view of c1 and c2. We pray that this scan will give the doctors some answers and us to for that matter. We finally had to really push the doctors. We just want them to tell us if they think that Emerie can never be fixed or if we need to go somewhere else. We just don't want Emerie to keep going through all these things if she can't be fixed. If this is the case we just have to accept God's will and learn to live with it and give Emerie the best quality of life we can. I believe God's heart is breaking right along with ours when he sees what Emerie is having to go through, but I also believe that he is sending us on this journey for a specific purpose. Emerie's IV fell out just a few minutes ago, so they are going to have to put it back in. We are waiting to hear what time they are going to do the scan. She is on a soon as possible basis today, but we also have to wait on anesthesia to come in to put her back to sleep. This is going to be hard on Emerie two days in a row. We are still in the pediatric intensive care unit but we can have visitors all day until 9:00 tonight. Just buzz the nurses when you get to the double doors and tell them that she is in 5303 and they will open the doors. Thanks again for all the messages sometimes when were feeling down and discouraged we get a message and it lifts our spirits. I will update when we find out when they will do the scan. Love, Tina
LAST NIGHT...
doctor finally came in
Posted 12 hours ago
The doctor is worried about how Emerie is still positioning in the collar. She already has two pressure sores developing. She is in alot of pain and now they are giving her valium to try to calm her down. She wants her daddy to hold her all the time. She has to be held. She can't lay down because it causes her too much pain. They said we are in for a long night, but right now the valium is knocking some of the edge off. The doctor is doing everything he can at this point to try and keep her out of the halo, but he is coming back in the morning to try to decide what we need to do. Thank you everyone for making this day more easy for Jeff, the kids, and myself. Love, Tina
AFTER SURGERY...
Waiting on hospital bed
Posted 20 hours ago
Jordan has been updating for me while I was rocking Emerie in the recovery room. I will go more into detail on what the doctors found this morning. They were hoping they would find a really scarred tight muscle, but the muscle was really not that tight. So this leads them to think that the problem is more structural (between the c1 and c2 vertebrae) Which is not what we wanted to hear. So the halo will not work that well at this point. We are going to try the cervical collar for about a month and see how much progress we make. They cut the muscle in two so it is very weak now. She will start physical therapy at the end of the week hopefully if she can tolerate it to strengthen the muscle. She is in alot of pain right now so they are trying to sedate her as much as possible. The collar is real tight and the doctors said that it makes her feel like someone is choking her all the time. Emerie is so small that the collar is rubbing pressure sores on her shoulder. They are also concerned that the collar will rub pressure sores in other places. We are very thankful that they chose to try the collar before they tried the halo. In a month if they don't see much progress they will probably send us somewhere out of state. Even though we did not get the report we wanted we still want to praise God for all he has brought us through already and remain faithful for what lies ahead. Thank you everyone for the inspirational messages, prayers, concerns, gifts and anything I may be forgetting. We feel truly blessed to have so many wonderful people in our lives. We are waiting on a hospital bed at the moment. We are on the 3rd floor in surgery waiting still. Let you know when we move. Love, Tina
No comments:
Post a Comment